Notes from the SSI Glaucoma Info Seminar

Earlier this year the Save Sight Institute held a community information session to help patients and others learn more about Glaucoma.

Earlier this year the Save Sight Institute held a community information session to help patients and others learn more about Glaucoma.

Glaucoma is the leading cause of irreversible blindness worldwide, and around 10% of Australian’s are destined to develop the sight-robbing disease in their lifetime.

Researchers at Save Sight Institute are working hard to find better ways of treating glaucoma and ultimately to preserve vision for those people affected.

Those who came along to the information session were delivered a highly informative and interesting talk by two of the best in the field:

  • Clinical Associate Professor Ivan Goldberg
  • Professor John Grigg
Insight News provided an excellent summary of the morning’s content in their August edition, and we are pleased to feature this story here (download PDF of pages 32-34). 

Kids Eyes: Overcoming Fear and Non-Compliance

“You know your child best and whether preparation for the clinic involves discussing drops ahead of time or not.

“You know your child best and whether preparation for the clinic involves discussing drops ahead of time or not. The most supportive environment for your child is when you and the doctor are working together and presenting a consistent approach.”

Professor John Grigg from the Save Sight Institute is a member of the Childhood Glaucoma Research Network (CGRN), an international network of clinicians and scientists who specialise in treating children with glaucoma.

The CGRN connects doctors around the globe to leverage each member’s unique expertise and understanding of paediatric eye disease and glaucoma in order to promote progress and advance research in the care of childhood glaucoma.

In addition to furthering research and quality of care, the CGRN also develops resources for parents and caregivers so they are empowered and encouraged to take an active role in the care of their child with glaucoma, so they can advocate for their child and adopt constructive ways to face the challenges of raising a child with chronic disease.

The August edition of their Community Connections newsletter features some excellent ideas for helping children who are frightened of eye drops or non-compliant with glasses. 

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SightFighters Unite for City2Surf

The Save Sight Institute was proudly represented at the famous City2Surf by its team of dedicated SightFighters.

The Save Sight Institute was proudly represented at the famous City2Surf by its team of dedicated SightFighters.

Ophthalmologists, patients, researchers, donors and friends completed the gruelling 14 kilometres in style.

Lisa Xenophondos is one such dedicated SightFighter who was back to do the City2Surf for the second year in a row, walking to raise money and awareness for research at the Save Sight Institute.

“My sister and my two beautiful nephews have Retinitis Pigmentosa” said Lisa. “Every discovery that the researchers make brings us one step closer to finding a cure for this insidious disease which is slowly causing blindness for people in my family.”

Lisa finished the walk in around three hours, stopping for photos and to chat with other entrants along the way.

“My love and passion for eye research and the people it helps is what pushed me over the finish line with a big smile” she said. “It’s such a special day, great community spirit, I’m proud to be a part of it. I love to watch everyone else in the C2S who is there to represent their own special causes with inspiration, passion, determination, love and commitment. It makes me feel great to be alive!”. 

Last year the SightFighter’s from the Save Sight Institute formed their first team, and more proactive people joined in again this year.

According to Professor Peter McCluskey, director of the Save Sight Institute “This was my second year doing the City2Surf. The crowds and community spirit in force are what makes the event so exciting to be a part of, and I beat my own time this year which I’m quite pleased with! It’s a great opportunity for us doctors and researchers to walk side by side with our patients, raising money for something which is important to both of us. I encourage all to join with us next year!”

To become a SightFighter, please contact the Save Sight Institute.

Fine Photography Exhibition in Support of Eye Research

Klaus Major is a Sydney-based photographer, primarily using analogue processes (film based) to create fine art photographs.

Klaus Major is a Sydney-based photographer, primarily using analogue processes (film based) to create fine art photographs.

Klaus Major is a Sydney-based photographer, primarily using analogue processes (film based) to create fine art photographs.

His forthcoming exhibition ‘Nautica’ will support eye research at Save Sight Institute, with 20% of all sales being donated to the Institute.

Over the past 17 years Klaus Major has successfully held six solo exhibitions and participated in six group exhibitions.

His style is both straightforward and lyrical, working together to achieve a dynamic sense of place.

Klaus’ latest exhibition ‘Nautica’ will open on Sunday 28th September (2.00pm – 4.00pm) and then open weekends (11.00am – 5.00pm) until Sunday 12th October at: 

Think Negative Studio
Suite 14, First Floor, Building B
10 Carrington Road, Marrickville

Save Sight Institute thanks Klaus Major for the support and encourages all patients and supporters to attend the exhibition.