Save Sight Registries and Keratoconus Australia Launch the ‘Keratoconus Club’

The inaugural meeting of the Keratoconus club was held on Thursday 6 October by the Save Sight Institute. Keratoconic patients, family, friends and eye care professionals heard guest speakers Michelle Urquhart, Larry Kornhauser (Keratoconus Australia), Margaret Lam and Prof Stephanie Watson share their expertise and experience of keratoconus.

Patients, Michelle and Larry, shared their experiences living with keratoconus and the importance of seeking help from other patients and support organisations. Margaret Lam, NSW President of the Cornea and Contact Lens Society of Australia presented on optometrists who specialize in managing keratoconus patients with contact lenses and current management techniques for patients. Professor Stephanie Watson, an eye surgeon with specialization in Cornea updated attendees on the latest developments with Corneal Cross Linking and the specialist management of patients with keratoconus.

Professor Watson the role of The Save Sight Registries Keratoconus audit, a sophisticated internet-based registry empowering doctors with timely access to data, and patients to be actively involved in their treatment journey. With support from the Ophthalmic Research Institute of Australia, Keratoconus Australia and the Save Sight Institute, the registry is collecting data that will inform treatment guidelines improving patient outcomes. Ophthalmologists using the registry are able to review their own patient outcomes and obtain statistical reports on their own practice thus leading to the delivery improved patient care.

The aim of the ‘Keratoconus Club’ is to form a community of professionals, patients, friends and family, committed to sharing information and providing support avenues for those living with keratoconus. One patient noted that “until today I had met only one person with KC [keratoconus]” highlighting the, at times, isolating nature of eye disease. With the success of the first meeting, the ‘Keratoconus Club’ will continue to grow and showcase the commitment of individuals and eye care professionals in driving the best clinical practice and support for keratoconic patients.

Patients, practitioners, family and friends wishing to be involved in the Keratoconus Club or Save Sight Registry can contact SSI.SSR@sydney.edu.au for further details

30th Annual Registrar’s Conference: Medical Retina 2017

11 – 13 January 2017
Sydney Eye Hospital, Sydney

Invited Speakers

Dr David Squirrell
Consultant Ophthalmologist, Greenlane Hospital

Dr Xavier Fagan
Consultant Ophthalmologist, Austin and Royal Victorian Eye & Ear Hospitals

Professor Mark Gillies
Director, Macula Research Group, Save Sight Insitute

 

Registration Rates

$545 Early Bird rate – until 14th November 2016
$645 Late rate
$445 Student rate

If you have any queries or would like to register please call 02 9382 7306.

Conference Programme

New Findings in AMD and MacTel from Two World Experts and a Local

Wednesday 16 November 2016
6:00pm – 7:30pm
The Claffy Lecture Theatre, Sydney Hospital

You are invited to a symposium to celebrate the generous contribution of John and Shirley Sarks to eye research. Internationally renowned guest speakers, Professors Christine Cucio, Alan Bird and Mark Gillies, will be presenting on new findings in AMD and MacTel.

PROGRAMME

Visualizing RPE Fate in AMD by Validated Multimodal Imaging
Professor Christine Curcio
Department of Ophthalmology, University of Alabama at Birmingham

Professor Christine CuricoChristine A. Curcio PhD is Professor of Ophthalmology at the University of Alabama School of Medicine in Birmingham, Alabama, USA. Relying on the Alabama Eye Bank, she investigates human retinal aging and age-related macular degeneration, focused on pathobiology and clinical image validation. Techniques include histopathology, electron microscopy, cell biology, lipoprotein biology, and transcriptomics in >140 peer review articles. Research has been funded by the National Institutes of Health, numerous foundations, and industry. She is a member of the Investigative Ophthalmology & Visual Science editorial board and an NIH study section. She was awarded the 2002 (inaugural) Roger H. Johnson Prize for Macular Degeneration research and 2014 Ludwig von Sallmann Prize for lifetime contribution to vision research. Please visit the Project MACULA online resource for AMD histopathology http://projectmacula.cis.uab.edu/E.

 

New Clinical Findings in MacTel Type 2
Emeritus Professor Alan Bird
Institute of Ophthalmology, University College London

Emeritis Professor Alan BirdAlan Bird is Emeritus Professor at the University of London and Honorary Consultant at Moorfields Eye Hospital. Professor Bird was trained in medicine at Guys Hospital Medical School where he completed junior posts in general medicine, surgery and neurosurgery. After a residency in ophthalmology at Moorfields, he worked as a senior registrar at The London Hospital and The Hospital for Nervous Diseases. This was followed by a fellowship in neuro-ophthalmology at Bascom Palmer Eye Institute with Dr Lawton Smith and a brief period with Dr Hoyt in San Francisco.

Professor Bird returned to Moorfields in 1969 and held successive appointments at the Institute of Ophthalmology as lecturer, senior lecturer and reader and then professor, simultaneously serving as a consultant at Moorfields Eye Hospital. His subspecialty interests moved from neuro-ophthalmology to retina and, with the conversion of clinical activity at Moorfields to specialised services, a Medical Retinal Clinic was established. The specialist service now has twelve consultants and holds thirty-four clinics each week.

Over the years, a productive multidisciplinary research team developed to investigate monogenic retinal disorders and age-related macular disease. Investigative techniques included molecular genetics, electrophysiology, psychophysics, specialised imaging and morphology.

Professor Bird has received a number of awards and accolades for his contribution to vision science.  He has published widely, having written more than 370 papers published in peer-reviewed journals, and over 70 book chapters.

 

Studies on the Pathogenesis of MacTel Type 2
Professor Mark Gillies
Save Sight Institute, University of Sydney

Professor Mark GilliesProfessor Mark Gillies MB BS, PhD, FRANZCO, a Sydney University Medical School Foundation Fellow and a clinician-scientist who specialises in diseases of the macula, directs the Macular Research Group at the Save Sight Institute of the University of Sydney. The group is developing better treatments for macular diseases through clinical and laboratory research. Mark is also heavily involved in the MacTel Project, an international collaborative study to identify a cure for Macular Telangiectasia Type 2. Mark has published over 160 original articles in the peer-reviewed literature, mostly concerned with the treatment of macular diseases.

 

There will be time for discussion and questions as well as a chance to catch up with colleagues after the event over refreshments.

Please register here by 31st October for catering purposes.