Kera Club 2017 continues to support patients with Keratoconus

Following from the success of the inaugural Kera Club event in 2016, Kera Club continues to grow, with over 40 patients and their families meeting to hear the latest research and treatment options for keratoconus.

Fight Corneal Blindness! Chief Investigator, Professor Stephanie Watson led the evening, highlighting the Save Sight Registries Keratoconus Registry, which focuses on outcomes of treatment including corneal cross-linking.

Professor Stephanie Watson presents at Kera Club 2017
Professor Stephanie Watson presents at Kera Club 2017

Optometrists Margaret Lam and Mark Koszek, entertained attendees with their debate on “Small versus Large contact lenses: Which is better?” while providing valuable information on the treatment of keratoconus with contact lenses.

Margaret Lam shares her insight into small contract lenses for patients with keratoconus
Margaret Lam shares her insight into small contract lenses for patients with keratoconus
Mark Koszek speaks about large contact lenses for patients with keratoconus
Mark Koszek speaks about large contact lenses for patients with keratoconus

 

The evening concluded with a lively Q&A session, highlighting the engagement and knowledge of attendees about their keratoconus, its management and treatment options.

 

Q&A session

 

The annual Kera Club, co-founded with Keratoconus Australia, has become an important event on the FCB!’s calendar. The evening provides a unique opportunity for patients and their family and friends to meet and hear updates on research breakthroughs and treatment options. The evening also provides an opportunity to network and share their individual stories of success and difficulties in a safe and supportive environment.

 

Michelle Urquhart facilitates the evening.
Michelle Urquhart facilitates the evening.

 

Patients and their families can keep up to date with the latest resources and events on keratoconus by following us on Facebook.

Missed out on Kera Club 2017? You can watch a recording of the event:

 

 

Incredible gift means a cure is in sight

Original article

An anonymous donation will have an enormous impact

Most of us walk through life never having to think about the fact that we can see clearly. But for many Australians, loss of vision is a real problem – and it can be especially scary when it comes out of the blue.

Advanced macular disease is the leading cause of legal blindness and vision loss in Australia, affecting one in seven Australians over the age of 50. While there are some treatments available for certain types of macular disease, there are no treatments for dry macular disease, and currently no cure. But researchers at the University of Sydney’s Save Sight Institute are working to change this.

A generous donation of $100,000 to the Save Sight Institute will establish a scholarship for a PhD student to work with the Macular Research Group, directed by Professor Mark Gillies, who are on the frontline of research into new treatments for macular disease. The gift comes as the University celebrates its 24 hour giving day, Pave the Way.

“Advanced macular disease robs people of their central vision. They may lose much of their independence, be unable to read the numbers on buses or train platformsm, and they may not recognise their friends on the street,” says Professor Gillies.

Professor Mark Gillies examines a Patient at SSI Clinic
Professor Mark Gillies

 

Despite the urgency of research into these issues, all of the research undertaken by the Institute is reliant on grants and the generosity of donors and benefactors who believe in the cause.

This means that gifts like this one will have more than just a personal impact on the academic career of a deserving student – it will have a real and lasting impact on the research being conducted, and the lives that the research affects.

“The donation will support a PhD student working in our lab for three to four years, which would otherwise not have been possible”, says Professor Gillies. The PhD student will engage directly with the testing of new treatments, one of which involves testing compounds like curcumin, an active ingredient in tumeric, to see if they can boost the macula’s defences against oxidative stress.

Everyone working at the Save Sight Institute is passionate about this cause. When you consider this disease affects 1.5 million Australians, it becomes clear that research into this area is incredibly important, and people like this donor make all the difference.

How you can help

If you would like more infomation on how to support the Save Sight Institute, please contact the Planned Giving team on +61 2 8627 8824, or online at savesightinstitute.org.au

Community Information Day 2017

Please join us at our annual Community Info Day

Register online – spaces are limited!

Information day for teens, parents and carers and professional staff working with vision impaired youth on the transition from high school to tertiary/vocational education and/or employment.

PROGRAMME* INCLUDES

  • Paralympic skier Bart Bunting and Nathan Hulls
  • Sessions for teens and adults on:
  • Post school transition
  • Tertiary studies support
  • Employment opportunities
  • Healthy minds
  • Navigating the NDIS T
  • eacher support
  • SSI updates including the Patient Care Coordinator!

AND MUCH MORE…

*Please note that programme is subject to change.

iFixPen to revolutionise the treatment of corneal ulcers

Researchers at the Save Sight Institute, University of Sydney, NSW Organ and Tissue Donation Service and the University of Wollongong are revolutionising the treatment of corneal ulcers with the development of a new iFixPen. Led by Professor Gerard Sutton, the iFixPen is an innovative delivery system for a specially designed “ink” that can treat corneal ulcers by promoting wound healing.

Corneal ulcers are predominantly caused by bacterial infection, which causes an open wound on the front of the eye. These ulcers can become serious and cause vision loss or blindness and early treatment is essential (1). While contact lens wearers are more prone to corneal ulcers, ulcers can also occur as a result of a fungal or viral infection, or injury or trauma (1). Currently the most common form of treatment is topical antibiotic, applied to the affected area (1).

A similar device has been used to treat knee cartilage damage as a result of arthritis, the iFixPen is the first of its kind to be developed to treat injuries or diseases of the eye. The project may still be in the early stages of development, but it is already being recognised, with the team awarded nearly $50,000 in funding from the Sydney Innovation and Research Symposium’s “Big Idea” Award in June this year. “It has captured the imagination of many people…and is actually our second innovation award. We were runners-up in the Innovation Competition within the Local Area Health District as well,” said Professor Gerard Sutton. “It was great to get the award for the whole team…[as] this is very much a team achievement.”

The injection of seed funding ensures the future of the corneal iFixPen looks bright, with the first prototype available for use in 2019. The project also highlights the importance of strong collaboration and partnership, which brings research, technology and innovation to the forefront of ophthalmic practice in the region.

“The iFixPen project is one of the cornerstone projects of the Australian Corneal Bioengineering Centre which has been established on the Sydney Eye Hospital Campus. It was set up to foster the development of corneal bioengineered products to treat corneal disease and makes use of the unique synergies of having the Save Sight Institute, Sydney Eye Hospital, The Lions NSW Eye Bank and The Australian Ocular Biobank in the same location. We are also collaborating with Professor Gordon Wallace from Wollongong University’s Intelligent Polymer Institute,” said Professor Gerard Sutton.

iFixPen researchers receive their Big Idea award for their idea to treat corneal ulcers.
[L to R] Professor Gerard Sutton, Dr Jingjing You, Dr Simon Cooper, PhD student Hannah Frazer and Dr Li Wen. ©The University of Sydney

(1) Vision Eye Institute. Corneal Ulcer. 2016. Available at: http://www.visioneyeinstitute.com.au/cornea/corneal-ulcer/ [Accessed 12 July 2017]

Annual Practical International Ophthalmology course highlights collaboration and excellence in the provision of ophthalmic care in Vietnam

Several Save Sight Institute academic staff have this week been teaching in Hanoi, Vietnam. As part of their Masters programme, students must undertake intensive practical training across Medical Retina, Glaucoma, Cornea and Paediatrics.

A/Prof John Grigg teaching during Vietnam prac course

 

“The most valuable lesson that I’ve grasped from my great teachers…is how to think like a real consultant. [To] put yourself in the context of the emergency setting or daily clinic and ask yourself what you should do when your patients come in. Their lectures were not just given to provide me with the ophthalmic knowledge but also to guide me through each clinical scenario. I want to express my thankfulness to Professor McCluskey, Associate Professor John Grigg and Dr Con Petsoglou for your enthusiasm, dedication and kindness,” said student Hoàng Thanh Tùng.

Vietnam Prac Course Class of 2017

 

The trip also provided an opportunity for our staff to meet with and tour the facilities at Hanoi Medical University, where many of our students work. Professor Peter McCluskey, Associate Professor John Grigg and Dr Con Petsoglou also met with the Director of the Vietnam National Institution of Ophthalmology (VNIO), Professor Nguyrn Xuan Hiep. The VNIO and Hanoi Medical University are this year celebrating 100 years of providing high quality ophthalmic care to the Vietnamese community and our partnership with these three institutions was celebrated over a cup of Vietnamese green tea.

 

SSI staff tour VNIO 2017

 

“Today we had the honour of meeting Professor Hiep from the NVIO, which treats 500,000 patients per year and performs over 50,000 eye operations in Hanoi. They also provide a mobile operating unit that visits rural areas to provide outreach services. Professor Hiep was very supportive of our teaching programme and welcomes future visits and educational opportunities between our institutions,” said Dr Con Petsoglou of the meeting.

 

The group also welcomed the new cohort of Vietnamese scholars due to commence their Masters in International Ophthalmology later this year over some of the finest Vietnamese cuisine Hanoi has to offer.