SSI shakes up care coordination model with innovative new programme to support patients
in Ageing, Glaucoma, Neuroscience, Retinal dystrophies, Dry eye and blepharitis, Education, Fundraising, History and People, Ocular Surface Disease, Paediatrics, Macular Degeneration, News
4 Nov 2015
In an effort to provide more day-to-day support for people with an eye disease, the Save Sight Institute has this year launched an innovative new pilot programme to connect individuals and families affected by eye disease and blindness with relevant support services.
The Care Coordinator Programme has been funded by the Walter and Eliza Hall Trust for an initial two years, and is a unique and free service available to people in NSW and the ACT.
Whilst initially focused on children and families, the service is nonetheless available to anybody who is struggling to adapt to life with deteriorating vision or blindness.
“I strongly encourage anyone concerned about the impact on their quality of life, to make contact with our Care Coordinator” said A/Prof Grigg.
The Care Coordination programme will focus on linking people to relevant support services in a timely manner, including orientation and mobility, adaptive technology, school assessments, counselling, occupational therapy and any other services relevant to living with eye disease and vision loss. The role will also help people to understand their condition and the potential implications of not complying with treatment regimes.
According to A/Professor John Grigg, a major supporter of the new initiative, “This programme has been introduced in response to community feedback that eye disease can be overwhelming and families often do not become aware of available and appropriate support services in a timely manner.”
Mr Kevin Elder has been appointed as inaugural Care Coordinator, and will get off to a running start having worked in the blindness and low vision field for some time, previously as an Occupational Therapist and Case Manager.
According to Kevin, “My new role will help ensure that patients have a holistic continuum of care, the main aim being to help newly diagnosed patients to navigate the ‘system’. I will liaise with the patient and with the health delivery team to identify needs, provide information and counselling, refer to relevant support services, and follow up to assess how they are tracking.”
I look forward to improving the experience of individuals and families affected by eye disease, and encourage you to contact me if I can be of any assistance for any of your patients.
To contact Kevin Elder to discuss any support needs you or your family may need, please call (02) 9382 7300 or email him.